Nora is big news!

Our local paper covered Nora’s 1-year seizure free anniversary! Front page of last Sunday’s paper! We’ve been local celebrities this week!

Read the story here:–year-old-keep-seizures/article_ca7dc366-6d66-541a-8516-4e87be41c9c0.html

Photo by Amanda Cowan, Corvallis Gazette-Times

Photo by Amanda Cowan, Corvallis Gazette-Times

I joke that our paper loves a good human interest story more than anything else. Rivaled only by the traffic circle controversy, the plastic bag ban debate, and dog custody cases.

Joking aside, we were pleased with their coverage of Nora’s story and explaining the ketogenic diet to a wider audience. From conversations and contacts this week, I know that our story is important to tell in our community.

My goal in contacting the paper is to create awareness about the diet as an effective and doable epilepsy treatment. I think the best thing that we can do is to show other people that there is hope, and to be there to help them heal their kids. There is a big learning curve for administering this diet, but I believe in the power and dedication of parents to make it happen. By passing along our information, we can help to make a difficult thing doable and we can share the load. Our next step is to set up a support group at Doernbecher pediatrics in Portland to help other families figure out how to get started and keep it up. We are tentatively meeting with the keto-clinic staff after Nora’s next appointment–here we go!

If any other keto families out there have tips or tricks for an effective support group–from either the supporting or being-supported perspective, I would love to hear it. I feel like we have an online support group going on here and it has been so valuable to us. It’s time to pass it forward.

I’ve been crazy busy with school and work lately, but I have a few more recipes and ideas that are ready to be published–so stay tuned!


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About Christy Anderson Brekken

In no particular order... Instructor and Researcher, Department of Applied Economics, Oregon State University. Educational background: University of MN Law School, 2005. MS in Ag and Resource Economics, Oregon State University, 2011. Teaches: Agricultural Law, Environmental Law. Mother: brilliant 9 year old boy; brilliant 6 year old girl with benign myoclonic epilepsy on a modified ketogenic diet therapy. Married to: Ted Brekken, OSU Department of Electrical Engineering. Ride: Xtra-cycle Edgerunner with kid seat; 400-pound cargo capacity. Grew up: Devils Lake, ND. Lived in: Minneapolis/St. Paul, MN, Pohang, South Korea, Trondheim, Norway, Corvallis, OR. Interests: Cooking, knitting, eating, yoga, laughing, hiking, traveling, staying sane.

7 thoughts on “Nora is big news!

    • Just passing on the inspiration that we get from you, Fawn!

      Yesterday we met another family in the crisis phase of their son’s epilepsy getting worse–they contacted us after seeing the article. A similar story to Nora’s, and similar to Jade’s, so I passed on your blog for more inspiration, along with all of our diet resources because they are determined to start MAD asap. And they are in with Nora’s doc soon. They are getting what they need for their little guy. Can’t have too much inspiration!

    • Aww yeah, she knows she’s the star of the show 🙂

      One day last week she inquired of everyone we know, “did you see my article?”

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