Nora is doing well.  She has not so far has another tonic clonic since April 5, and significantly, she has not had any waking myoclonics in the aftermath.

We have upped her ratio a little bit, and especially made sure she gets a good dose of fat right before bed to try to limit morning seizure activity.

Daily myoclonic count with model.



Daily myoclonic count with diet metrics.

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3 thoughts on “Update

  1. So glad she is doing well. Will say a prayer that it continues! Our little guy is seizure free for 13 weeks! It is funny (in an ironic way, not haha) at how on edge I feel every time I thing about how long we have been without a seizure.

    Y’all have a great week!

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