Not much new to report. Nora is still doing well. She had a cold last week but is mostly over it now. The other day she used the word “remedy.” She has been very affectionate toward me lately, and very anxious for my attention the minute I walk in the door in the evening.
I have new plots, so let’s get to it!
Nora's daily seizure count since the beginning of December with a log fit.
Daily seizure counts since the beginning of reliable records. Also plotted is the three main therapies we have tried: Keppra, Depakote, and the ketogenic diet.
Daily myoclonic seizure count plotted with dietary metrics. The red line is the ratio of fat to (carbs+protein) scaled so that 15=3. You can see that moving this ratio to 3:1 has been very effective at controlling the seizures. About a week ago, we also decreased her daily caloric intake after consultation with the pediatric dietician.
These plots really demonstrate how effective the diet has been. May it please continue to be effective. And all hail Christy for her masterful administration of diet.
all hail christy, diet master, and ted, data master. the two of you together are a wonderful team. nora’s progress is so encouraging. i hope others struggling with this find your website!
Oooh! Negative seizures in Nora’s future! (I’m sorry. I couldn’t help it.)
Cora, I’ll have you know that always bothered me, and to rectify it, I just switched over to a manually tuned exponential fit:
y = c1 + (c2-c1)*(1-2^(-t/T))
Where c1 is the starting seizure count, c2 is the final seizure count, and T is the half-life.
It’ll be in the next set of plots.
Nerds.
A negative seizure is a heightened state of extra sensory perception. Nora will start hearing colors and seeing when your guitar string is flat. Maybe she will be able to describe the fabric of reality. I’m looking forward to it–don’t change the graph.