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Author Archives: Ted Brekken
Neurologist visit and update
Last Friday we went to visit Nora’s pediatric neurologist at Doernbecher Children’s Hospital in Portland. The visit went well and I certainly get the feeling the medical team there is delighted to see Nora doing well. I imagine that is … Continue reading
Posted in Nora's History, Uncategorized
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We want to make a quick clarification. The Charlie Foundation has developed an online meal calculator tool called the “KetoCalculator.” Because of our unusual induction into the diet, we started using our own personally developed Google Docs spreadsheet for calculating … Continue reading
Update
Things are going well. Nora is developing well and having good days. I haven’t posted an update on the data recently. Check out the plot. Nora has been free of myoclonics for over 5 months (!), and free of tonic-clonics … Continue reading
Posted in Nora's History
4 Comments
Current Therapy
I added a separate page to lay out Nora’s current treatment and supplementation. See the tab “Current Therapy” above.
Posted in Nora's History
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Update
Things are going well. It has been 3 months since the last myoclonic seizure and about 6 weeks since the last tonic-clonic. Nora is shiny, happy, articulate, and energetic. She recently learned to ride bicycle without training wheels. Her 4th … Continue reading
Posted in Behavior
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Brief update
Things are going well. It’s been two weeks since Nora’s last tonic clonic seizure and almost two months since her last true waking myoclonic seizure (!). We got the OK from the doctor to decrease her Depakote. He’s advocating a … Continue reading
Posted in Nora's History
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Update
Nora is doing well. She has not so far has another tonic clonic since April 5, and significantly, she has not had any waking myoclonics in the aftermath. We have upped her ratio a little bit, and especially made sure … Continue reading
Posted in Nora's History
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Nora Update: April 1, 2012
Seizures per day before the diet: 17.3 Seizures per day now: 0.8 Reduction: 95% Half-life: 14.2 days Nora is continuing to do well. We’ve had total seizure control for about 20 days since the last bump. Her mood, energy, and … Continue reading
Posted in Nora's History
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…And Back Again
Today’s visit to the keto-clinic went well. Nora was bright and shiny for the doc. The bottom line is that we’ll hold the course for a few more weeks. If we can continue to demonstrate good seizure control during that … Continue reading
Posted in Nora's History
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Nora Update: March 17, 2012
Seizures per day before the diet: 17.5 Seizures per day now: 1.1 Reduction: 94% Half-life: 13.3 days After a bumpy two weeks, I am happy to report that we are back in total seizure control. We have made a few … Continue reading
Posted in Nora's History
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