In reply to KarenB.

Thanks Karen, that's all Ted's doing. We started keeping data when Nora started having myoclonics, trying to figure out what was causing/aggravating/helping it. There were a lot more variables that we were tracking for months. Her doctors loved the charts too.

I have not been on the Charlie Foundation forums yet, but should now. I had a very hard time reading about other kids' stories because it tore my heart out, and I had a hard time feeling inundated with information from many sources, like other parents asking and answering questions. In the beginning it was too much to take in, I had to focus on our process and she wasn't technically on the ketogenic diet (and still is modified), and wasn't given many resources until we were far into it. But now we are branching out and making connections. I really appreciate your suggestion to post our blog with the charts there, it makes a lot of sense. Best wishes to you too, fellow keto mom.

Christy