{"id":823,"date":"2026-03-16T08:13:59","date_gmt":"2026-03-16T16:13:59","guid":{"rendered":"https:\/\/blogs.oregonstate.edu\/opec\/?p=823"},"modified":"2026-03-16T08:16:06","modified_gmt":"2026-03-16T16:16:06","slug":"parenting-children-with-disabilities","status":"publish","type":"post","link":"https:\/\/blogs.oregonstate.edu\/opec\/parenting-children-with-disabilities\/","title":{"rendered":"Parenting Children with Disabilities\u00a0"},"content":{"rendered":"\n
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Espa\u00f1ol<\/a><\/div>\n<\/div>\n\n\n\n

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When my nephew received a diagnosis of a rare genetic syndrome, our family was grief-stricken, scared, confused, and also relieved. Doctors tested for multiple issues, some of them grave. We knew this would lead to more questions, life-changing effort on his mother\u2019s part, and constant anxiety. Our love for him was steady – we all quickly gained perspective and gratitude for healthy days. <\/p>\n\n\n\n

A diagnosis of a disability in your child can flood you with many emotions including anger, denial, sadness, and grief. Parents may also feel relief. You may have felt that something was \u201coff\u201d and your child was struggling or you were failing as a parent, when in fact, there were underlying issues leading to your child\u2019s overall needs. Cope with your emotions and understand that there is no shame in how you are feeling. <\/p>\n\n\n\n

Raising a child can be stressful and considering extra ability issues may be overwhelming at times. Find healthy ways to manage your stress: walk with friends, join a social group, trade baby-sitting with a neighbor. Work with your emotions so that you can reach full acceptance of your child and be willing to ask others for help.  <\/p>\n\n\n\n

Make a plan with your medical team to support your family. Here are suggestions to get you started. <\/p>\n\n\n\n

Focus on what your child can do. <\/h2>\n\n\n\n

This one goes for all parents! Focusing on the positive developments in our children will be uplifting for us and them. We see more of what we look for, so keep your eye out for growth and moments of joy. Connect with your child and express your unconditional love for them. <\/p>\n\n\n\n

Seek out early intervention. <\/h2>\n\n\n\n

Children’s needs vary widely based on their diagnosis and often within the disability. You know your child better than anyone else and can help figure out how your child fits in with their diagnosis. <\/p>\n\n\n\n

Ask your pediatrician about what services are available to help your child. Early intervention can make crucial differences for young children. Collaborating with your child\u2019s service team is important! Reading Rockets<\/a> suggests ways to get involved and prepare for meetings.  <\/p>\n\n\n\n

Write down your questions. <\/h2>\n\n\n\n

Oftentimes, you will feel as though you have more questions than answers, especially when searching online for advice. Keep a notebook to record all your thoughts and questions so that you can stay organized when you\u2019re meeting with professionals. It also may help to have someone attend doctor\u2019s appointments with you so they can record information and you can focus on the conversation and your emotions. <\/p>\n\n\n\n

Find a support network. <\/h2>\n\n\n\n

Reach out to a support network that \u201cgets it.\u201d Every parent can share stories about their children, but sometimes you need a group that understands just what you\u2019re going through. Connect with other caregivers that have children with additional needs. Look for online groups specific to your child\u2019s diagnosis and also seek out families in your community that can share insights to your local resources. Many school districts have a special education parent network. <\/p>\n\n\n\n

Provide a variety of social opportunities. <\/h2>\n\n\n\n

Nurture friendships with many different children. Look to your neighbors, schools, daycare, even friendly families you meet at the park. Diverse friend groups offer glimpses into other worlds and promote accepting, inclusive relationships for everyone. <\/p>\n\n\n\n

Give your child opportunities to problem solve and struggle a bit to build their resiliency and independence skills. Psychology Today recommends<\/a>, \u201ccalm guidance and support from parents during interactions with other kids may help, as can preparing kids for social interactions<\/a> so they have internal scripts to call on when things don\u2019t go according to plan.\u201d <\/p>\n\n\n\n

When I become overwhelmed with the challenges my nephew faces, I remember that strength comes from love. He and I are both stronger when we focus on the love we have for each other and our time together. You may not be able to change news from doctors, but you can always choose love, kindness, and tenderness. <\/p>\n\n\n\n

Children\u2019s Books: <\/h2>\n\n\n\n

Chronically Dolores<\/a> by Maya Van Wagenen (young adult) <\/p>\n\n\n\n

Included by Jayneed Sanders<\/a> (picture book) <\/p>\n\n\n\n

Forever is Now<\/a> by Mariama J. Lockington (young adult) <\/p>\n\n\n\n

Just Ask!<\/a> \/ \u00a1Solo Pregunta! by Sonia Sotomayor (picture book) <\/p>\n\n\n\n

A Little Like Magic<\/a> by Sarah Kurpiel (picture book) <\/p>\n\n\n\n

More Than Words<\/a> by Roz Maclean (picture book) <\/p>\n\n\n\n

Popcorn<\/a> by Rob Harrell (middle grade) <\/p>\n\n\n\n

Wonder<\/a> by R.J. Palacio (middle grade) <\/p>\n\n\n\n

Online Resources: <\/h2>\n\n\n\n

Global Genes<\/a> <\/p>\n\n\n\n

Early Intervention<\/a> <\/p>\n\n\n\n

FACT Oregon<\/a>. Empowering families \u2013 Transforming disability \/ Capacitar a las familias – Transformar la discapacidad <\/p>\n\n\n\n

Search your child\u2019s specific diagnosis for a research-based organization <\/p>\n\n\n\n

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By Megan McQueen.
Spanish translation by  Dr. J Senior Consulting, LLC<\/a> <\/p>\n\n\n\n

Megan McQueen is a warmhearted teacher, coach, consultant, and writer. She grounds her work in empathetic education, imparting a strong sense of community and social skills to those with which she works. Megan prioritizes emotional learning and problem solving skills. When not at work, she is most likely playing with her husband, two children, and pup.<\/em><\/p>\n\n\n\n

Learn more about the\u00a0<\/em>Oregon Parenting Education Collaborative<\/em><\/a>\u00a0and read\u00a0<\/em>our blog<\/em><\/a>!<\/em><\/p>\n\n\n\n

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Read All Posts in English<\/a><\/div>\n<\/div>\n<\/div><\/div>\n","protected":false},"excerpt":{"rendered":"

When my nephew received a diagnosis of a rare genetic syndrome, our family was grief-stricken, scared, confused, and also relieved. Doctors tested for multiple issues, some of them grave. We knew this would lead to more questions, life-changing effort on his mother\u2019s part, and constant anxiety. Our love for him was steady – we all […]<\/p>\n","protected":false},"author":14663,"featured_media":825,"comment_status":"closed","ping_status":"open","sticky":false,"template":"templates\/template-full-width.php","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":true,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[5],"tags":[141],"class_list":["post-823","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-english","tag-parents"],"yoast_head":"\nParenting Children with Disabilities\u00a0 - Oregon Parenting Education Collaborative Blog<\/title>\n<meta name=\"description\" content=\"Children's needs vary widely based on their diagnosis and often within the disability. 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