Category Archives: Nora’s History

Nora’s MAD About Granola!

Last week we took Nora’s ratio down to 2.5:1 and she is still doing great! We are getting ready to go back to North Dakota and Minnesota to visit friends and family for the first time since starting the diet, … Continue reading

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Continuing to wean and a berry tart for spring

We moved Nora’s ratio down to 2.75:1 about 10 days ago and she continues to thrive. So much has been going on that we have not had time to write a thing–dance recital, kindergarten graduation, Father’s Day, summer vacation, and … Continue reading

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Stepping down to 3:1

Nora has been cruising along as 3.25:1 for the last 3.5 weeks. Her wean schedule calls for going 3 to 4 weeks at each step down. Originally we thought that we would keep 3.25:1 for 4.5 weeks, because we started … Continue reading

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Keto kids make the news

Last year when Nora was approaching her 1-year seizure free anniversary, I called our local newspaper because I thought they might be interested in her story. They love a good human interest story and I wanted to spread the word … Continue reading

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And now we wean

It is a big week in Nora’s world, although I’m sure it seems bigger to us than to her. Yesterday we went to Portland to see Dr. Wray for her ketoclinic checkup.¬†Tomorrow will be her 2-year seizure-free anniversary. It is … Continue reading

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Bringing Keto to Kindergarten, Part 3

It’s almost half way through the school year! When things are going along fine but you know there are potential problems lurking, it’s hard to feel really at ease. You can’t really know that things will be fine until something … Continue reading

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Odds, Ends, and Giving Thanks

Just a quick update with a few keto notes that have been on my mind. Nora is 19 months + 2 days seizure free, getting over a nasty cold/flu and looking forward to Thanksgiving break from school. Still no Cytra-K … Continue reading

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Bringing keto to kindergarten, part 1

Nora started school this week! Our school district does a “gentle start” for kindergarten. We met with her teacher for a half-hour last week, when we got to talk to her directly about the diet and Nora’s needs. Then Nora … Continue reading

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GLUT1 test results are in…

Nora’s GLUT1 test was negative, with 91% sensitivity. With no other clinical signs of GLUT1 deficiency in her history (besides seizures and diet success), Nora’s doctor is feeling confident that this is not her issue. That’s a good thing, because … Continue reading

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Keto-Clinic check up, and then she was 5!

Happy 5th Birthday to Nora! Last Friday we visited Dr. Wray in Portland for Nora’s latest keto clinic check up. She is right on track for height and weight, maintaining both at about the 75th percentile. Many keto kids fall … Continue reading

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