Category Archives: Nora’s History

And now we wean

It is a big week in Nora’s world, although I’m sure it seems bigger to us than to her. Yesterday we went to Portland to see Dr. Wray for her ketoclinic checkup.¬†Tomorrow will be her 2-year seizure-free anniversary. It is … Continue reading

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Bringing Keto to Kindergarten, Part 3

It’s almost half way through the school year! When things are going along fine but you know there are potential problems lurking, it’s hard to feel really at ease. You can’t really know that things will be fine until something … Continue reading

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Odds, Ends, and Giving Thanks

Just a quick update with a few keto notes that have been on my mind. Nora is 19 months + 2 days seizure free, getting over a nasty cold/flu and looking forward to Thanksgiving break from school. Still no Cytra-K … Continue reading

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Bringing keto to kindergarten, part 1

Nora started school this week! Our school district does a “gentle start” for kindergarten. We met with her teacher for a half-hour last week, when we got to talk to her directly about the diet and Nora’s needs. Then Nora … Continue reading

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GLUT1 test results are in…

Nora’s GLUT1 test was negative, with 91% sensitivity. With no other clinical signs of GLUT1 deficiency in her history (besides seizures and diet success), Nora’s doctor is feeling confident that this is not her issue. That’s a good thing, because … Continue reading

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Keto-Clinic check up, and then she was 5!

Happy 5th Birthday to Nora! Last Friday we visited Dr. Wray in Portland for Nora’s latest keto clinic check up. She is right on track for height and weight, maintaining both at about the 75th percentile. Many keto kids fall … Continue reading

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Nora is big news!

Our local paper covered Nora’s 1-year seizure free anniversary! Front page of last Sunday’s paper! We’ve been local celebrities this week! Read the story here:¬†http://www.gazettetimes.com/news/local/high-fat-ketogenic-diet-helps–year-old-keep-seizures/article_ca7dc366-6d66-541a-8516-4e87be41c9c0.html I joke that our paper loves a good human interest story more than anything else. … Continue reading

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One Year Seizure Free!

Milestones are always a time to celebrate and reflect. Nora experienced her last seizure 1 year ago today. In response to that seizure, we decided to move her ratio up to 3.5:1 and we seem to have found the sweet … Continue reading

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Four-month Keto-Clinic Checkup

On Friday, Nora and I traveled up to Doernbecher Children’s Hospital in Portland for her 4-month check up. We had been doing 3-month visits, but with her successful treatment Dr. Wray suggested that we spread out the check-ups a bit … Continue reading

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And now it’s December…

About 1 year ago now Nora first entered ketosis. Oh, those were a first few bad days. She would lie on the floor moaning for toast. I thought that she might chain herself to the refrigerator until we gave her … Continue reading

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