Monthly Archives: February 2012

Sun through rain and snow

Posted on February 29, 2012 by Christy Anderson Brekken

Outside our windows today. Interesting weather here lately. Nora still had a few myoclonics yesterday. I slept with her again last night, and either she slept very peacefully or I slept very soundly, because she didn’t wake me up. I … Continue reading →

Posted in Nora's History | 2 Comments

SCN1A Test

Posted on February 27, 2012 by Ted Brekken

We received the results of Nora’s SCN1A (neural sodium channel gene) test today.  It is negative.  Meaning she does not have that gene mutation. This is not really good or bad news, just a piece of information.  The SCN1A gene … Continue reading →

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I spoke too soon…

Posted on February 27, 2012 by Christy Anderson Brekken

[Insert your worst curse word(s) here. Responses will vary.] Nora had more myoclonic seizures today, 5 total. It was hard to see them come back. They were clustered in the afternoon and she had none in the evening, so I’m … Continue reading →

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And a brighter tomorrow

Posted on February 27, 2012 by Christy Anderson Brekken

Nora slept well on Sunday night. I slept with her again to keep a closer “ear” on her. She had a few bigger myoclonics in her sleep, which I am sure is still pretty usual for her and no tonic-clonics. … Continue reading →

Posted in Nora's History | 4 Comments

Here in the dark

Posted on February 26, 2012 by Christy Anderson Brekken

Last night at 3 am Nora had another tonic-clonic seizure. She was stirring in her sleep around 11pm and I was still awake, so I went in to lay with her. I decided to stay in her bed. She slept … Continue reading →

Posted in Nora's History | 4 Comments

Nora eats and eats. All by herself.

Posted on February 24, 2012 by Christy Anderson Brekken

Last night at dinner I had a little revelation when Nora pushed away her plate and asked to leave the table–and her plate was empty! One behavioral frustration with this diet has been hand-feeding Nora at almost every meal. She … Continue reading →

Posted in Behavior | 4 Comments

Update: Feb. 20, 2012

Posted on February 20, 2012 by Ted Brekken

Time for updated plots. Nora is continuing to do well.  We still get a little hint now and then that her seizure threshold is still low.  She had a loud myoclonic seizure falling asleep last night, and I thought she … Continue reading →

Posted in Nora's History | 5 Comments

First restaurant visit a victory

Posted on February 18, 2012 by Christy Anderson Brekken

In the almost 3 months of Nora’s diet, I don’t think that we have been to a restaurant as a family, especially one that had been a family favorite like Sunnyside Up. The kids are accustomed to getting blueberry pancakes … Continue reading →

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A cheesecake by any other name…

Posted on February 15, 2012 by Christy Anderson Brekken

We work so hard on getting the right balance of food into Nora in a palate- and socially-pleasing way, but we don’t always succeed. There are so many details to consider, and sometimes things are still just not right. On … Continue reading →

Posted in Recipes | 3 Comments

Ode to Double Devonshire Cream

Posted on February 14, 2012 by Christy Anderson Brekken

Mmmm, double cream. A truly English indulgence. And a staple of Nora’s diet. Today I picked up a whole case of double cream on Co-op Owner Day. 10% discount for ordering a case, 10% discount for picking it up on … Continue reading →

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